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兄弟情:与患埃斯伯格症的哥哥之间的故事
[al:] [by:www.pronounceword.com] [00:02.71]27 Oh, Brother 我爱我的哥哥 [00:06.64](By Sam Frender ) (译 /雷起凤) [00:08.35]I used to feel doomed. 我以前常常觉得一切都是命中注定。 [00:12.20]I used to worry that I would grow up to be like my brother. 我常常担心自己长大了会像哥哥一样。 [00:16.12]I didn't understand why Eric behaved the way he did, and I was afraid I'd catch his problems.我以前不明白为什么埃里克会是那个样子,也很害怕自己会变成他那样。 [00:23.47]Now I understand that my brother and I are different. 现在我明白了,哥哥和我是不一样的。 [00:27.31]Eric has Asperger's syndrome . 埃里克患有埃斯伯格症。 [00:30.43]It means he has a hard time making friends. 这就意味着他很难和别人交朋友。 [00:33.75]Sometimes he screams and cries, and he worries about everything. 有时他会大哭大叫,对什么事都感到焦虑不安。 [00:38.71]Crowds and noises make him uncomfortable, he hates the way some foods feel on his tongue, and he tears the labels out of his clothes. 人群和噪音会令他心神不宁。他讨厌某些食物的口感,还把衣服上的标签扯掉。 [00:48.67]He doesn't like to be touched. 他不喜欢别人碰他。 [00:50.64]But most of all, having Asperger's syndrome can mean feeling lonely. 最糟糕的是,患有埃斯伯格症可能意味着感到孤独。 [00:56.12]I think Eric sometimes feels like a puzzle piece that doesn't fit the puzzle. 我觉得埃里克有时感觉就像拼图玩具中不合适的一块 [01:02.35]It looks like it should fit, but it doesn't. ――看着好像能拼上去, 实际上却不能。 [01:05.59]I'm only eight, but everyone asks me to be understanding and patient with Eric. 我只有八岁,可是大家都要我体谅埃里克,要对他有耐心。 [01:11.77]Sometimes it's too much - I just want to be a normal child with a normal family. 有时候真让人受不了――我只想做一个正常的孩子,拥有一个正常的家庭。 [01:17.97]Sometimes I wish I could just go to live with a different family, or stay in a hotel, just to get away. 有时候我希望自己去另一个家庭生活,或者去住旅馆,只要能逃离就好。 [01:25.87]Even little things, like getting ready to go out, take ages. 即使是一点点小事,比如准备出门,都要拖拖拉拉很长时间。 [01:30.85]Eric can never leave the house without certain toys. 埃里克要是不带上他那几样玩具就绝不肯走出大门。 [01:34.75]It doesn't matter how late we are; he has to find the toys he needs. 不管我们晚了多久,他一定得找到他要的那些玩具。 [01:40.23]If he can't find them, he has a tantrum . 如果找不到,他就大发脾气。 [01:43.91]I get scared, then. 每当这时候,我就会很害怕。 [01:45.88]When he's having a tantrum, he screams and throws things. 他发脾气的时候会尖声叫喊,乱摔东西。 [01:50.32]He says horrible things-that he hates me, and that I'm stupid-or he hits me. 他要么说一些很难听的话――他说他恨我,说我是个蠢货――要么就揍我。 [01:57.54]Sometimes I feel like I am the only kid who has to deal with all this. 有时候我觉得自己是唯一一个不得不应付这种事的小孩子。 [02:03.19]That makes me feel lonely. 这让我觉得很孤独。 [02:05.89]But other times I feel protective of him. 但是有的时候,我觉得我想保护他。 [02:09.47]Eric gets very nervous with people he doesn't know. 埃里克在他不认识的人面前特别紧张。 [02:13.73]When he gets nervous, he doesn't know what to say or do, so he just stands there looking scared. 他一紧张就不知道该说什么或者做什么,因此他就只是站在那里,看上去吓坏了的样子。 [02:21.13]And when he gets scared, he has tics -sometimes he shakes his head, sometimes he sniffs or coughs a lot, 他害怕的时候就会抽搐――有时候会摇头,有时候会使劲抽吸鼻子或者不停咳嗽, [02:30.28]sometimes he throws things up in the air, and sometimes he picks at his skin or cuts his clothes. 有时候会把东西扔到半空中,有时候会掐自己的皮肤或剪自己的衣服。 [02:37.90]My family is used to his tics, but most kids think it's weird, so they tease him. 我们家的人对他的抽搐已经习以为常,但是别的孩子大多会觉得他行为古怪,便嘲笑他。 [02:45.57]I am not afraid of other kids. 我不怕那些孩子。 [02:48.22]If I was there when they bullied him, I would tell them to leave him alone. 我要是看到他们欺负他,就会警告他们离他远一点。 [02:53.38]Eric is very funny and he likes to act silly a lot of the time. 埃里克非常逗,他经常喜欢装傻充愣。 [02:58.56]I usually enjoy watching him - he makes me laugh. 我经常喜欢看他表演――他能逗笑我。 [03:02.55]But sometimes I just don't feel silly. 但是有的时候我不想犯傻。 [03:05.97]I ask him to stop, but he doesn't. 我要他停下来,可他就是不停, [03:09.10]It really gets on my nerves ! Other times, Eric comes into my room while I'm sleeping and wakes me up. 真把我气坏了。有时候,埃里克会在我睡觉的时候到我房间里来,把我弄醒。 [03:17.66]He knows I'm sleeping, but he wants to be with me. 他明知我在睡觉,可他还是想和我玩。 [03:21.45]I know that he feels lonely,so I don't want to get cross , but I really hate it when he wakes me up. 我知道他感到孤单,所以我不想对他发脾气,但是我真的很讨厌他把我弄醒。 [03:30.37]It's even hard sometimes when Eric just wants to show me he loves me. 甚至有时,埃里克只是想表示一下他爱我都不是件容易的事。 [03:35.52]He likes to hug me or give me a kiss. 他喜欢抱我或者亲我。 [03:38.56]I love him too, but sometimes it bothers me the way he shows his love: he hugs me too tight, or gives me slobbery kisses. 我也爱他,可是有时他表达爱的方式真让我受不了:他要不就把我抱得太紧,要不就口水嗒拉地亲我。 [03:48.68]Mum tries to teach him how to be gentle, but he just doesn't seem to get it. 妈妈也试着教他怎样动作轻一点,可他似乎就是学不会。 [03:54.87]I know that Eric needs special help, but sometimes I resent that he gets to do special things, even though he misbehaves. 我知道埃里克需要特殊的帮助,但是有时候即使他表现很差还能受到特殊待遇,我就会觉得很生气。 [04:04.70]And Mum and Dad spend lots of money to get help for Eric, which means that we don't have money left for fun things like holidays. 爸爸妈妈为了给埃里克治病花了很多钱,这样我们就没有钱去享受诸如度假之类的乐事了。 [04:13.63]Sometimes I feel embarrassed about him. 有时候我会为他而感到很难为情。 [04:17.52]Eric's 13, but he still likes to dress up like his favorite TV characters. 埃里克都13岁了,还喜欢打扮得像他最喜欢的电视剧里的人物一样。 [04:23.79]He always wants me to play along, which is fine when we are at home. 他总是要我也这样陪他玩。在家里的时候倒也没什么, [04:28.60]But I feel silly when he wants me to do it in public, like at the supermarket. 可是在公共场合,比如在超市,他还要我这样,我就觉得太傻了。 [04:34.41]Sometimes I don't want to talk to my friends about Eric because I am embarrassed to tell them about the things that he does. 有时候我不愿和朋友们谈论埃里克,因为说起他做的那些事我会觉得很难堪。 [04:43.43]I am afraid that people in my school will know that he is my brother, and they won't want to be my friends. 我怕学校里的人知道他是我哥哥,怕他们不想再和我做朋友。 [04:50.45]But even though Eric bothers me sometimes, I miss him when he is gone.可尽管埃里克有时会让我心烦,如果他不在我还挺想他的。 [04:55.80]I enjoy being away from him for a couple of hours, but I hate it when he is away for a long time. 离开他几个小时我会很开心,但是如果长时间离开他我就不乐意了。 [05:03.21]Eric doesn't have many friends. 埃里克朋友不多。 [05:05.51]When I play with Eric, he wants everything to be his way and he likes to do the same things over and over again. 我和他一起玩的时候,什么事情都要按他说的办,而且他喜欢重复做一件事情。 [05:13.73]He likes to watch the same TV programme, listen to the same songs, and play the same games. 他喜欢看同样的电视节目,听同样的几首歌,玩同样的几个游戏。 [05:21.24]If he says or does something to make you laugh, he will keep doing it even after it isn't funny any more. 如果他说了什么或做了什么把你逗笑了,尽管那已经不再好笑了,他还会老说老做。 [05:28.26]He never knows when to stop. 他从不知道什么时候该停。 [05:30.64]I feel sad that Eric's life is so hard for him. 埃里克的生活真是太艰难了,我为他感到难过。 [05:34.69]I wish he had more friends. 我希望他能有更多的朋友; [05:36.78]I wish school were easier for him. 我希望他能更加适应学校生活; [05:39.57]I wish he didn't have to have tantrums.我希望他不要总是发脾气; [05:42.66]I wish he could be happy more of the time. 我希望他快乐的时候能更多一些。 [05:45.50]Sometimes I even think that he has changed and I start to trust him. 有时我甚至觉得他已经变了, 我开始信任他了。 [05:50.29]He does his homework or takes a shower without complaining, and then I think that maybe he will be all right after all. 他做作业或洗澡时不再满腹牢骚,这时候我就想, 或许他终究会好起来的。 [05:59.51]Eric's behavior upsets Mum and Dad, and I don't want them to be unhappy, 埃里克的行为让爸爸妈妈很伤心。我不想看到他们不高兴, [06:05.11]so I often feel that I can't make mistakes or do anything wrong because they will end up being even more upset. 所以我常常觉得自己不能犯错误或做错事,因为那样会让他们更难过。 [06:13.52]For example, when Dad cooks something new, Eric won't taste it. 比如说,爸爸要是做了什么新菜,埃里克是不会去尝一口的。 [06:18.83]Sometimes he has a tantrum if someone asks him to eat something he doesn't think he will like.有时候要是别人让他吃他觉得自己不会喜欢的东西,他就会大发脾气, [06:25.50]It can ruin the whole dinner. 那这一顿饭就算是毁了。 [06:27.53]So I feel like I have to eat everything Dad makes and say "It's great!" even if I don't really like it. 所以我觉得爸爸做什么我就应该吃什么,哪怕我并不是真的喜欢,也要说“味道棒极了”。 [06:35.90]Even though Mum and Dad tell me that I don't have to fix the family's problems, I still feel that I have to do it. 虽然爸爸妈妈叫我不必操心家里的这些事儿,可我觉得我不得不操心。 [06:43.90]Trying to be perfect is very exhausting. 要想把什么都做得完美真是太让人身心疲惫了。 [06:46.84]I spend even more time with Eric than Mum and Dad. 我和埃里克在一起的时间比爸爸妈妈和他在一起的时间还多。 [06:51.60]I always feel that I have to watch him to make sure that he's OK. 我总觉得我得看着他点儿,别让他有什么闪失。 [06:55.92]It's hard to have fun while you are worrying about someone else. 当你担心着别人时,就很难玩得开心。 [07:01.10]Sometimes I feel like I'm the older brother even though I'm not. 尽管我是弟弟,有时候却觉得我是哥哥。 [07:06.11]Deep down, I know Eric doesn't do it on purpose. 在我内心深处,我知道埃里克不是故意要那样的。 [07:10.50]I know that he feels scared when he is out of control, and I know he regrets saying mean things to me. 我知道当他无法自控时就会感到害怕,我知道他在辱骂我之后会感到内疚。 [07:17.38]So, no matter what Eric says or does, I always forgive him.所以,无论埃里克说了什么或做了什么,我都原谅他。 [07:23.14]I always still love him. 我仍然会爱他。 [07:25.29]Eric can make me laugh so hard that I can't breathe. 埃里克能让我笑得喘不过气儿来。 [07:29.72]When I cry, he tries anything and everything he can think of to make me happy. 在我哭泣的时候,他想方设法地逗我开心。 [07:35.80]He brings me stuffed animals and acts silly to make me laugh. 他给我拿毛绒填充动物玩具,做傻乎乎的动作逗我笑。 [07:39.93]He waits for me when I'm busy and he likes to pick me up from the school bus. 如果我在忙,他会等着我;他还喜欢到校车停靠站接我回家; [07:44.95]He takes me for rides on his skateboard. 他用滑板带我一起玩。 [07:47.91]He tries to get me interested in things that are important to him. 对于那些他觉得重要的东西,他极力想让我也产生兴趣。 [07:52.40]Eric helps me find things when I lose them. 我要是丢了东西,埃里克会帮我找。 [07:55.50]He always knows where I am and what I am doing. 他总是知道我在哪儿、在干什么。 [07:59.76]He worries if I am not where he expects me to be.要是我不在他认为我应该在的地方,他就会担心。 [08:03.46]In his own way, he watches out for me and tries to take care of me. 他以他自己的方式看护着我、照顾着我。 [08:09.80]He loves me. 他爱我。 [08:10.22]Even though life is a challenge for Eric, he never stops trying. 尽管生活对埃里克而言是一种挑战,但是他从来没有停止过努力。 [08:14.96]I am proud of him. 我为他感到骄傲。